A two-part, national coalition aiming to ensure patients have a voice as policymakers at the state and national levels are reviewing drug costs. We will be helping both organizations and patients navigate these complex processes, while identifying and connecting them to opportunities to engage every step of the way.
Our efforts will address both the Centers for Medicare and Medicaid Services (CMS) Drug Price Negotiations and state level Prescription Drug Affordability Boards (PDABs).
Our coalition is open to all disease groups affected by drug reviews; it is not Autoimmune Arthritis and Autoinflammatory Arthritis disease specific.
Interested in Joining? Complete this Form!
THE FOLLOWING INFORMATION IS FOR PATIENT ORGANIZATIONS AND AFFILIATED GROUPS TO LEARN MORE ABOUT THE ENSURING ACCESS THROUGH COLLABORATIVE HEALTH (EACH) COALITION. PATIENTS AND CAREGIVERS, PLEASE CLICK THE BUTTON TO BE REDIRECTED TO THE PATIENT INCLUSION COUNCIL (PIC) PAGE.
Ensuring Access through Collaborative Health (EACH) & the Patient Inclusion Council (PIC)
2023 saw the creation and expansion of affordability reviews being led by the Centers of Medicare and Medicaid Services (CMS) at the national level. Several states established Prescription Drug Affordability Boards (PDABs) with the primary aim to evaluate, assess, and address the affordability of prescription drugs for patients.
Patient access to reviewed treatments
Patient access to treatments that are considered similar or in the same drug class
Health equity - which patients will be left out?
The impact on precision medicine or other personalized treatment options
Increased utilization management or limitations on access
The development of new treatments in the same or other classes
Mission of Ensuring Access through Collaborative Health (EACH): EACH aims to unite allied organizations to share resources and collectively advocate for patient-first policies that protect access to medications.
EACH will consist of patient advocacy groups and other aligned organizations who support patient access to therapies. The coalition aims to educate groups, share information and resources, help navigate complex engagement processes, and advocate for patient involvement every step of the way.
Our goal is to speak with one collective voice to improve access for patients. Our advocacy efforts will include outreach to CMS, PDABs, and legislators considering the implementation of PDABs in new states.
Membership is open to all patient organizations and other allied organizations. We invite you to join us in elevating patients and their interests. We are stronger together.
High priced drugs - like those used to treat AiArthritis and other chronic diseases - are under review, largely to determine if patients and the healthcare system can afford them. If it's determined these drugs are unaffordable, actions may be taken to try and reduce the costs. This sounds like a great plan, but we have concerns about the process and possible unintended consequences.
Mission of the Patient Inclusion Council (PIC): The PIC aims to empower patients to advocate for their own care needs through a long-term recruitment, education, and advocacy program.
By joining the PIC, patients and caregivers will have access to education programming led by fellow patients. Members will have access to online classes about how regulations impact their care, how to reach out to policymakers, and more. Additionally, online resources will include a video and document library.
The curriculum will equip patients and caregivers with the tools and confidence they need to share their stories directly with policymakers through meetings and testimony, provide regulators with critical feedback on patient perspectives and priorities, and evaluate patient focused materials for effectiveness.
Membership is open to anyone but will most benefit individuals with one or more chronic conditions that are managed through prescribed treatments or doctor administered therapies. We encourage caregivers of these individuals to also join.
International Foundation for AiArthritis
6605 Nottingham Ave.
St. Louis, MO 63109-2661
Copyright 2024. All rights reserved. Information on this site is intended for informational purposes only Our foundation does not engage in the practice of medicine. Please consult a physician to obtain personal healthcare and treatment options. 501(c) 3 Nonprofit Tax ID: 27-1214308.