"Go With Us!" to Conferences
"Go With Us!" to Conferences. This is a one-of-a-kind experience for people affected by AiArthritis diseases to learn more about research (pharmacologic and non-pharmacologic) and get insights from fellow patients how to use the information discussed to improve your healthcare journey.
THE ULTIMATE VIRTUAL PATIENT-LED EDUCATION AND RESEARCH EXPERIENCE IS BACK! DON'T MISS OUT!
In June 2024, join the AiArthritis team (staff and volunteers - all patients) as we attend the European Alliance of Associations for Rheumatology (EULAR), the largest rheumatology research conference that takes place annually in Europe.
This is one of the best-liked programs we offer at AiArthritis, mostly because it's truly a one-of-a-kind experience. Learn about the latest research (pharmaceutical and non-pharmaceutical), sessions that aim to improve doctor-patient communication, and get behind the scenes access to the in person team (and those they meet while there!)
Sign up today, you won't be sorry you did!
CHECK OUT THE #GoWithUs to THE AMERICAN COLLEGE OF RHEUMATOLOGY (ACR) CONVERGENCE ANNUAL RESEARCH CONFERENCE
Leaders who are persons affected by AiArthritis diseases, headed to the biggest rheumatology conference of the year and we are invited YOU to #GoWithUs (virtually, that is).
We did WAY more than just report back what we learned. We (patients/peers) also:
*This program is a free service offered by AiArthritis and made possible thanks to grants and donations from our community. Anyone in the world can register to attend. However, to ensure the privacy of those affected by AiArthritis diseases, for the elevated, private "What'sApp group, only those affected by the diseases (patients, loved ones, the undiagnosed mystery patients) will be permitted into this group.
Photos: Leila (SLE) and Michael (PsA) enjoying dinner on the first night; Leila with the AiArthritis booth; Leila with Carrie Beach, immediate past president of RNS; Leila with Kevin Lyons, Executive Director of RNS
In early August 2023, we attended the Rheumatology Nurses Society Annual Conference and hosted our first Mini "Go With Us!" in Austin, Texas.
Thank you to the 20+ people who signed up to "Go With Us!" All the educational takeaway videos can be found in the playlist below.
Photos: Tiffany (AxSpA), Deb (RA), Eileen (RA); Tiffany, Deb, and Eileen with Rheumatology Nurse Practitioner, Christine Stamatos; Eileen and Deb with Ben Nowell from the Global Healthy Living Foundation; Deb with Auralie Najm, OMERACT Rheumatologist in Glasgow and new AiArthritis board member.
In early June 2023, we attended the first of two rheumatology research conferences this year - the European Alliance of Associations for Rheumatology (EULAR) Congress in Milan, Italy.
Thank you to the 50+ people who signed up to "Go With Us!" All the private debrief videos can be found in the playlist below.
Photos: AiArthritis Go With Us Team; Tiffany and volunteer Deb with Horizon Pharmaceuticals and President and President Elect from Rheumatology Nurses Society; Tiffany and volunteer Deb with FORWARD National Data Bank for Rheumatic Diseases (housing our own AiArthritis Research Data Bank) and Vasculitis Foundation; Tiffany presenting as the first group of Patient Organizations to lead an ACR presentation with researchers as their panelists.
November 2022
Every year AiArthritis staff and volunteers attend two scientific conferences annually so we can learn new information to incorporate back into the work we do and so we can share information with our community that could improve their health journeys. This has also become part of the "Go With Us!" to Conferences program, where we bring at least one lucky volunteer with us and also bring and unlimited number of extended experience participants with us. This year our full salaried staff (Tiffany, CEO, Axial Spondyloarthritis; Katie, Operations Manager, Rheumatoid Arthritis; Lindsey, Public Policy Manager, Psoriatic Arthritis/parent of juveniles with our diseases; Leila, Education and Engagement Manager, Lupus Nephritis) set out alongside volunteers Deb, Stephanie, and Eileen "Chronic Eileen" - all living with Rheumatoid Arthritis, to report back to you what we learned. Additionally, over 30 patients from around the world signed up to go along daily - which means they get daily insider email updates with videos and messages from our team.
In June 2022, three AiArthritis'ers (Tiffany, CEO - non-radiographic axial spondyloarthritis, Katie - Operations Manager - Rheumatoid Arthritis, and Deb - Volunteer - Rheumatoid Arthritis) flew to Denmark to attend EULAR 2022 in person AND we 'took with us' another 16 patients (virtually!)
Hear from the "Go With Us" team about what we learned at EULAR 2022 and see how the information we share can empower you in your own disease management journey.
Education = Empowerment and Action! We didn't just report back information what we learned, we also discussed how the research happening now can impact what therapies patients may have access to now and in the future.
Also - with so many 'going with us', we TRENDED #gowithus on Facebook!
Watch all the Patient-Reported Research Debriefs from ACR 2021!
Join core AiArthritis team - Tiffany, Deb, and Katie, along with two dditional attendees we invited to attend "with us" this year: Effie Koliopoulos (@RisingAboveRa on Facebook, Twitter, and Instagram) and Stephanie Aleite (@theYoungFace_RA on Twitter and @the YoungFaceofArthritis on Instagram and TikTok).
This years core topics included: Precision Medicine, Remission, Alternative Therapies, COVID19, Health Disparities, and much more. You can find all our debriefs available on our YouTube channel!
Watch all the Patient-Reported Research Debriefs from EULAR2021!
Join core AiArthritis team - Tiffany, Deb, and Katie, along with three additional attendees we invited to attend "with us": Patrice (who attended with us in 2020), Leslie Rott Welsbacher (from Getting Closer to Myself blog) and Eileen Davidson (Chronic Eileen), as we attend the EULAR 2021 Congress.
You can find all our debriefs available on our YouTube channel!
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